Gillberg and two chief physicians involved in the study stated that medical ethics principles prevented them from turning over sensitive personal and medical data as the participants' parents had been promised confidentiality in writing before giving informed consent on behalf of their children. The docent (docent is the second highest grade in the Swedish academic system) of sociology Eva Kärfve and the pediatrician and general practioner Leif Elinder who were critical of what they saw as scientific misconduct in Gillbergs research and questioned Gillberg's practices, had previously filed complaints that questioned the integrity of the study, invoked the Swedish Freedom of Information Act in order to gain access to the raw data of the study after their fraud allegations had been investigated and officially dismissed by the regional ethics committee. The controversy involved public access under the Swedish Principle of Public Access ( offentlighetsprincipen) to medical records and other personal data about a group of children participating in an early longitudinal study on ADHD/DAMP, commenced in 1977 at Gothenburg University. Gillberg is also known for his role in a controversy relating to the confidentiality of medical records. The project also includes a genetic study on the Faroe Islands. Some of the results were published during 2007. researchers examining various aspects autism. The project is a collaboration between scientists specialized in child and youth psychiatry, molecular biology and neuroscience and involves a genetic part with an international study team of French, British and U.S. Since 2006, Gillberg is involved in a large cross-disciplinary project titled "Autism spectrum conditions: the Gothenburg collaborative studies", financed by the Swedish Research Council (Vetenskapsrådet), expected to run until the end of 2009. The mutation prevents a complete protein from forming and is inherited from the mother. The 2003 breakthrough indicated the location of the mutation to be on the NLGN4 gene and the NGLN3 gene. Previous studies, such as the Paris Autism Research International Sib-Pair Study (PARIS), coordinated by Gillberg and Marion Leboyer, have more generally associated the X-chromosome regions with autism. The team identified mutations altering two genes on the X chromosome which seem to be implicated in the formation of synapses (communication spaces between neurons), in two families where several members are affected. In 2003, a French and Swedish research team at the Institut Pasteur and the psychiatric departments at Gothenburg University and University of Paris, led by Thomas Bourgeron, Marion Leboyer and Gillberg, discovered the first precisely identified genetic mutations in individuals with autism. Gillberg has done extensive research into autism throughout his academic career. In the early 1980s, the concept of an ' autism spectrum' was introduced by Lorna Wing and Gillberg. Gillberg is also the founding editor of the journal European Child & Adolescent Psychiatry. The case was widely covered in the media. Which they were subsequently sentenced for. After a court looked over the case again and ruled that the data was to be made available for a review, three of Gillbergs coworkers destroyed the 22 shelf meters of research material. During these events, Gillberg received a suspended sentence as well as a fine, due to that he was found guilty of malfeasance in office due to his failiure to make the research available for review. Gillberg is also known for the controversial Gothenburg Study of Children with DAMP, where Gillberg and his colleagues were subject to accusations of manipulating research data. He has also been a visiting professor at the universities of Bergen, New York, Odense, St George's (University of London), San Francisco, and Glasgow and Strathclyde. Lars Christopher Gillberg (born 19 April 1950), who has sometimes published as Gillberg and Gillberg with his wife Carina Gillberg, is a professor of child and adolescent psychiatry at Gothenburg University in Gothenburg, Sweden. Deficits in attention, motor control and perception,.Research controversy regarding the Gothenburg Study of Children with DAMP.
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